Friday, August 29, 2014

What a week . . . . .

Some of us in life  have our own little routines and schedules that we like and enjoy.   Every now and then something changes that routine, something small or big, but all cope, do we not?  It could be a gentle hiccup in our routine or a gigantic snowball coming down at one full force.  One wonders why things happen good or bad, one thinks how did I just not see this coming?  

If we all could have that wonderful exotic gypsy looking across at us with her smile and her golden ball predicting one's future I am sure some of us would be truly grateful.  Well,  we at the "Pye Residence" sure as hell could have done with a gypsy crystal ball this week.

This week;

  • Saturday - Bubble had the Squirts; 
  • Monday - Dragonfly had Caustic Poisoning; another vet visit, 
  • Tuesday - Johnny had Chemo Hell Day;
  • Wednesday - Johnny had Chemo Hell Day continued;
  • Wednesday - Michelle slipped, sprained her ankle currently on crutches, normally in her  four and half inch Jimmy Choo heels, at 7am she decided to wear flip-flops, albeit designer; and finally
  • Friday - Some low down ruffian hoodlum rear ended me at a RED light.  On the pretense of an insurance swap, decided to do a hit and run.  So I have a steering wheel implant on my chest a sprained ankle and a sore rear end!
  • In the circle of life and death this is all just circumstance.
"Dear God please can you make next week peaceful and uneventful?










 

Tuesday, August 26, 2014

Tuesday 26th August

Hello friends,

Johnny, has to take a check list of medications on a daily basis, pink, yellow, blue, white and red, one of them being a prescription of Methadone, for pain.  

Methadone is used to treat severe pain, belonging to a class of drugs known as narcotic (opiate).  It works in the brain to change how your body feels and responds to pain.  Thus it is an incredibly strong pain killer it's also used for heroin users.  For weeks now Johnny lacked, vitality, strength stamina, exuberance.  Well you might say - "but of course Michelle he has Stage IV Pancreatic Cancer".    Being on so many medications his appetite was not as strong,  he had lost so much weight, visibly he looked like he had cancer.  It was actually not a good time for him. 

But, Johnny does not have pain.  What is pain?  What do you yourself call pain? To us, pain is "writhing around on the floor in a foetal position" thus Methadone could be used, but Johnny is not on the floor in pain, he is in mild discomfort.  So last Monday 18th August, after conversations with our oncologist, we decided to cut his daily Methadone intake from 10mg to 5mg.  A remarkably different person, bright as a button a twinkle in his eyes,  a  ferocious appetite.  We were told hit the protein hit the carbs big time.  He would call and say "Feeeed Me, I am starving". We blitzed the protein/carbs  all last week and finally he regained all his weight.  He was animated, addressing his clients and business, might I add, he was known to be clambering over many a carpet roll, for a dear friend.   Heading to the city here in San Fran, for a solitude lunch at Betelnut!   We even had a night out ourselves. Nice.  One thinks of miracles, is the chemo really working can we really shrink this sucker into remission?    

Well, today was another long day,  Chemo Day smacked him hard, back down again, with a mighty large cricket bat.  We have since decided, second day after Chemo Day, Johnny will have Acu-Pressure and rest at home.  Now-a-days, business can be done anywhere, from the beach, airplane and at home maybe Mount Everest?

Our bi-weekly blood work results were all normal,  our counts are good, liver is normal, cancer markers CA19-9 are down more, and his white and red cells are normal, meaning he is good for  Chemo, his body is able to take it.      

Our Dragonfly, Maine Coon cat, who adores Johnny has been poisoned,  between Dragonfly and Johnny they are both on heavy medications, Bubble our Shitzu has an upset tummy. Since Saturday one has been up on the hour every hour for Bubble - taking her outside for pooping, washing her bottom every time, finally after so many bottom washes I decided to shave her bottom, at 3am in the morning - cleaner that way right!    My plate is flowing and I have no need for seconds!



Friday, August 15, 2014

Friday 15th August


Tough week - new chest power port on Monday as the first port was infected, surgery all day for a replacement, followed by  Chemo Day Tuesday.   A brutal end of the day, continued into Wednesday.  It's as though the Chemo is "gurgling-bubbling" running rife through his veins which of course it is but  you can see his added discomfort and displeasure of the situation.  

Last week Johnny was doing great - perkier and more like Johnny but after a Chemo day it knocks him for six.    Days like this it's as though we take two steps forward and ten massive steps back.

But now for some good news.

Our blood work count is UP our Liver count is UP our Blood cells are UP.  It's all good and Normal.  The chemo is doing its job - with a mighty fine grin on her face, our oncologist Bobby Head said "I am tickled pink".  Keep it up kiddo!!






Monday, August 11, 2014

Monday 11th August

Good evening friends and loved ones,

Today was interesting to say the least.  Johnny is at his finest, given in all things considered.  As you know Johnny has a Chest Power Port embedded on this right hand side,  for easy access for the Chemo and other blood work.  Friday, Johnny noticed his Port was become red, over the weekend it become significantly redder and tender, today with a slight infection.  Today he took himself into Marin General Hospital, more surgery required that they remove his old Chest Power Port and give him a newer Port now to his left side.

For those of us that are "huggers" when greeting please try not to give him that great "bear hug", for obvious reasons.

Chemo day tomorrow - five hours and more.


Friday, August 8, 2014

Friday 8th August


This evening, the house is quiet, still, motionless.  A complete stillness - like water standing. Awaiting.  A moment. A ripple.   For us here on the lagoon - one awaits a skier to disturb the waters.  It does not happen.  Let it be quiet. 

Puppies are worn out resting at  Johnny's feet whilst he rests.   Dragonfly our Main Coon has not left Johnny's side since 3rd July.  He is talkative and head-butts Johnny with the odd gentle love-bite.  Whereas the other cat, Jellyfish, will swipe him any time he can.    It is true, animals sense, feel and smell.  They are insightful.   We, as humans just don't realize or recognize it enough.   The only movement I feel is our American Flag fluttering in this evening sunset's breeze.

All this week Johnny has looked great and energized.  But, a long day today - end of the week, he looks exhausted.   I panic when I see him, white as a ghost, thinking "god I hope the sun is out tomorrow, I need to get him a little glow-tan".   

Next Tuesday is our long day of chemo, hah, reminds me I must ask that nurse for a more suitable designer portable chemo take-away bag - this blue thing is beginning to bug  me - it needs a logo of some kind or stripes of kind.

This evening, my heart is in pain, my eyes are full with endless tears.  Everyday, one awakens to a new dawn and hopes the chemo has shrunk his tumor, those cancer cells just that little bit more, and are disintegrating into dust, whilst his body is being fueled with good food and he has the strength to  fight emotionally and mentally to challenge this horrible sickness.


Below is Johnny at his finest  - smiles and laughter all round.
I love you dearly, darling Mr BooBoo!!

Johnny @ Sams Cafe - Tiburon - Happy Happy Days 





Monday, August 4, 2014

Monday 4th August

Good evening,  friends and family,

It is a month today,  Dr. Bettinger confirmed to us of Johnny's illness.   Time has flown, a whirlwind of events, unfortunately, nothing as exciting as a Gala Opening Event or a 49'ers game at the Levi Stadium! but a ceaseless bowl of colorful pills to be consumed, along with hours upon hours  hooked up to a chemo drip in our newly found hospital digs!

Johnny looks great, "how is that possible?" might one ask, "he has cancer?"   With all the medication he is taking, the odd boat trip on the lagoon or snoozing under the canopy in the Bubble Lounge, the sun will surely follow him.   So our tanned Liverpool Johnny looks great, but feels like utter crap.    He is weak and does not have the strength he used to.

He spends the odd hours at Bentleys Home Design finishing up paperwork and supporting his clients as much as he can with their designs.  Should you be in the vicinity of Bentleys, do not hesitate to stop by or even call him on his mobile to say hello.