Sunday 26th July, 2015

Dearest family and friends,

With utter hopelessness and  heartache deep in my soul,  I am sorry to tell you, the cancer has an overwhelming firm grip upon my darling Johnny.   He now has a highly developed Sister Mary Joseph Nodule in his umbilical cord, refers to a palpable nodule bulging into the umbilicus as a result of metastasis of a malignant cancer in the pelvis or abdomen.  At the second round of the clinical trial we were denied, due to his severe failing health.    Johnny of course, did not believe the doctor, and try as he might to negotiate, we were told unfathomably that we need to spend as much time together as possible as time is short. 

It is the strong-headed, determined, belligerent, fighter side of our Johnny’s character which has got him from nowhere to living in one of the most prestigious counties in a large elegant house, built lovingly with his own hands, and with me as his  wife, by his side. 

Of course, we are not surprised Johnny is going nowhere without a fight.  He knows as well as we all do that he is not going to win but he has scored almost 10 months off his opponent and if he thinks there is the smallest chance of winning weeks or even days,  our Johnny will undoubtedly fight.

Johnny is  already sleeping a lot, which is good.  But when he is wakeful, he is still fighting.  When the pain becomes intolerable he is given Morphine,  dosage has been increased due to pain levels escalating,  we need to ensure Johnny is in no discomfort. 

As far as Johnny is concerned he has been cheated when he still has so much to live for - namely family in Liverpool, me as his wife, close friends and living life to the maximum.

Hospice are magnificent, their visits and calm reassurance that the patient my dearest Johnny is in the best place possible for his needs.  Here at home by the water.

We await Lee Carter Pye's imminent arrival this weekend, for father and son time together.  Please respect "their time" they need.  If you wish to visit please email me or call me.

Special thanks to our exceptional friends who have committed their time on a daily basis out of love and friendship to  Johnny and I, over these horrible months, making sure  he/we do not feel "alone or abandoned",   along with watching over me, allowing me to lean upon them for significant emotional support.


Special thanks 

(in no particular order);

Kavie Von Husen

Bill & Ashley Timmel

Michael Bell & Jennifer Reed

Hartley Smith

Courtney Lewis

Lee Carter Pye

Andy Pye

Cindy Root

Lourdes Esquival

Arabella Cooper

Susan Foley

Danielle Graves 
Deborah Holland